The First 6 Weeks

A special guest post by my wife. There will come a time at some point in your NICU journey when you will need to make a tough choice (several probably). Whether it's a course of treatment that has increased risks attached, an operation on your already sick baby, agreeing to a DNR, or even just … Continue reading Making the tough choice

This last week has been very hard and on numerous occasions I've been very close to giving up hope. I haven't, and I now have a renewed drive to carry on and be strong for my girls. To provide some context for this post, here are the cliff notes: At the start of the week … Continue reading Don’t give up, never give up

Or at least I really wasn't okay the other day and for better or worse I chose not to write this until I had been able to reflect on why I was not okay. I suspect I also didn't just want to write what could have been considered a diary entry about why I felt … Continue reading I’m not okay

We had always anticipated our girls being in NICU, or maybe even SCBU, for at least a couple of weeks when they were born as this seems to be the norm with twins and we had a feeling that they would be born around the 32-34 week mark anyway. With this in mind, I had … Continue reading Going back to work

Aside from your baby being in intensive care, one of the things that makes NICU scary is all the beeping, bonging and other noises that resonate around the ward. Even worse is when you're sitting with your baby, your nurse is on a break and something starts alarming. You immediately wonder what you've done, perhaps … Continue reading The alarms…all the alarms

I write this as a first time dad to my beautiful twin girls who were born at the end of July 2016 at 23 weeks and 5 days. Yes, that’s very early; 16 weeks and 2 days too early for a singleton pregnancy or 13 weeks and 2 days too early for a twin pregnancy. … Continue reading The first 6 weeks of your lives

I feel I should provide some explanation as to why the ramblings of a first time father have made their way on to the Internet in what is likely to come across as a chaotic and haphazard manner . The truth is that it wasn't my intention to publish anything on the Internet and instead I was … Continue reading Hello

Unfortunately I don't have a magic wand, time machine or crystal ball so that I can tell you everything will be fine. The hardest thing about your baby being in NICU is that no-one can tell you what will happen tomorrow or next week or in a month’s time. Every journey and story will be … Continue reading My words of advice

My daughters, at their last weigh day, are now 6 weeks old and weigh 912g (2lb) and 1,101g (2lb 7oz) respectively from their birth weights. After 6 weeks, it seems strange but they don’t look small anymore; Instead I think my perception has changed and now full term babies appear as giants even if they … Continue reading Where are we at the moment?